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General Medical/Health Resources

American Medical Association

The AMA is an organization committed to medicine and professionalism. The AMA works as the patient's advocate and the physician's voice. As the voice of the American medical profession, the AMA develops and promotes standards in medical practice, research and education; serves as an advocate on behalf of physicians and patients; and provides timely nformation on health matters.

American Medical News (AMNews) is now available on personal digital assistants (PDAs) or via your wireless Internet connection. This mobile edition keeps physicians wired into medical news. For more information on the growth of PDAs and a list of hand-held resources, visit the AMNews Web site at http://www.ama-assn.org/sci-pubs/amnews/pick_01/tesa0730.htm.

Association for the Advancement of Medical Instrumentation

AAMI is the primary source of consensus and timely information on medical instrumentaion and technology, and is the primary resource for the industry, the professions, and government for national and international standards. AAMI provides multidisciplinary leadership and programs that enhance the ability of the professions, health care institutions, and industry to understand, develop, manage and use medical instrumentation and related technologies safely and effectively.

The Association for the Advancement of Medical Instrumentation (AAMI) announced the release of a new product for dialysis professionals -- a complete collection of current dialysis standards, technical information reports and monographs on CD-ROM. AAMI Standards on CD - Dialysis contains the newest AAMI/American National Standards for dialysis and is a must for any dialysis professional, facility or manufacturer of dialysis equipment. To order your new AAMI Standards on CD - Dialysis please call 1-800-332-2264 (ext.217) or visit http://www.aami.org, http://www.aami.org/publications/CD/index.html for more information. 

Government Funded Agencies

Agency for Health Care Research and Quality

AHRQ, a part of the U.S. Department of Health and Human Services, is the lead agency charged with supporting research designed to improve the quality of healthcare, reduce its costs, improve patient safety ,decrease medical errors, and broaden access to essential services. AHRQ sponsors and conducts research that provides evidence-based information on healthcare decisionmakers-patients and clinicians, health system leaders, and policymakers-make more informed decisions and improve the quality of healthcare services. 

CDC's Campaign to Prevent Antimicrobial Resistance in Healthcare Settings

A resource for clinicians and patients to download or order fact sheets, posters, slide sets, and other information about preventing antimicrobial resistance in healthcare settings.

 

Centers for Medicare & Medicaid Services (CMS)

CMS provides health insurance for over 74 million Americans through Medicare, Medicaid and State Children's Health Insurance Program(SCHIP). The majority of these individuals receive their benefits through the fee-for-service delivery system, however, an increasing number are choosing managed care plans. Visit our web site to learn about CMS activities and initiatives.

 

Fistula First

The Centers for Medicare and Medicaid Services (CMS) in close collaboration with key stakeholders in the renal community, announced the launch of Fistula First, to achieve breakthrough improvements in the use of safe vascular access and promote the placement of AV Fistulas in all suitable hemodialysis patients.

 

Medicare Information - The Official U.S. Government Site for Medicare

This Medicare beneficiary website offers several new publications: a brochure about the website itself, Choosing a Doctor; Choosing a Hospital, Choosing Treatment, Medicare and Other Health Benefits, Your Guide to Who Pays First, and the Spanish Preventive brochure. New and improved publications are also available on the site including Medicare Fraud and Abuse, Understanding Your Medicare Choices, and Medicare Coverage for Second Surgical Opinions.

 

Medicare Payment Advisory Commission

The Medicare Payment Advisory Commission (MedPAC) is an independent federal body that advises the U.S. Congress on issues affecting the Medicare program. It was established by the Balanced Budget Act of 1997 (P.L. 105-33), which merged the Prospective Payment Assessment Commission (ProPAC) and the Physician Payment Review Commission (PPRC). - Charged with reviewing payment policies under Medicare and making recommendations to Congress. -Last report out in August 1999 on teaching hospitals and GME

 

National Institute of Diabetes and Digestive and Kidney Diseases

The National Institute of Diabetes and Digestive and Kidney Diseases conducts and supports research on many of the most serious diseases affecting public health. The Institute supports basic and clinical research through investigator-initiated grants, program project and center grants, and career development and training awards. The Institute also supports research and development projects and large-scale clinical trials through contracts.

 

United Network for Organ Sharing (UNOS)

The transplant community is joined under a nationwide umbrella: the United Network for Organ Sharing, or UNOS. UNOS, located in Richmond, Virginia, is a private, not-for-profit, membership corporation qualified as a charitable organization under section 501 (c)(3) of the IRC. UNOS administers the national Organ Procurement and Transplantation Network (OPTN) and the U.S. Scientific Registry on Organ Transplantation under contracts with the U.S. Department of Health and Human Services. The U.S. Scientific Registry is the most complete medical database in the world, tracking all solid organ transplants since October 1, 1987.

 

United Stated Renal Data System (USRDS)

The United States Renal Data System (USRDS) is a national data system which collects, analyzes, and distributes information about end-stage renal disease (ESRD) in the United States. The USRDS is funded directly by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) in conjunction with the Health Care Financing Administration (HCFA).

 

Nephrology Information Resources

Nephrology Nursing Certification Commission

The NNCC site has information regarding credentialing nurses working with patients with kidney disease.

 

Renal-Related Organizations

American Academy of Nephrology Physician Assistants

AANPA is a non-profit organization founded in 1997. Its purpose is to support the professional growth, development, training, education and networking of PAs within the specialty of nephrology. AANPA is an officially recognized specialty organization of the AAPA. We endeavor to act as an information resource to nephrologists and other renal colleagues regarding PA practice within the field of nephrology. 

American Association of Kidney Patients (AAKP)

Founded 30 years ago, the American Association of Kidney Patients (AAKP) exists to serve the needs, interests and welfare of all kidney patients and their families.

 

American Kidney Fund (AKF)

The American Kidney Fund is a national voluntary health organization dedicated to improving the daily lives of people with chronic kidney disease.

 

American Nephrology Nurses Association (ANNA)

Established as a nonprofit organization in 1969, the American Nephrology Nurses' Association (ANNA) has a growing membership of nearly 10,000 nephrology professionals. ANNA operates under a constitution and bylaws and serves its members through a national structure, four regions, and over 100 local chapters. Registered nurses and other healthcare professionals with varying experience and expertise in such areas as conservative management, peritoneal dialysis, hemodialysis, continuous renal replacement therapies, and renal and extra-renal transplantation comprise its membership. The American Nephrology Nurses' Association as a professional organization has the obligation to set forth and update high standards of patient care, educate its practitioners, stimulate research, disseminate new ideas through the field, promote interdisciplinary communication and cooperation, and address issues encompassing the practice of nephrology nursing.

 

American Society of Diagnostic and Interventional Nephrology

The American Society of Diagnostic and Interventional Nephrology was founded in 2000 to promote the proper application of new and existing procedures in the practice of nephrology with the goal of improving the care of nephrology patients. These procedures include, but are not limited to insertion of tunneled hemodialysis and peritoneal dialysis catheters, endovascular procedures, and diagnostic sonography. Activities of the Society include the establishment of practice standards, certification of physicians in specific procedures, accreditation of training programs in specific procedures, development of training tools and techniques, sponsoring symposia and training courses, and the dissemination of information through periodic meetings and through print and other media. The Society organized its first program in New Orleans. It also organized its first annual scientific meeting in Phoenix, AZ in February 2005 which was met with overwhelming success. The Society is working closely with other societies and with nephrology training programs to achieve its goals.

 

ASN

American Society of Nephrology

ASPN

American Society of Pediatric Nephrology

Dialysis Patient Citizens

DPC is a non-profit patient organization dedication to improving the quality of life for dialysis and pre-dialysispatients.

 

ESRD Networks

End Stage Renal Disease Forum of Networks

 

Foundation for Children with Atypical HUS

Foundation for Children with Atypical HUS as well as the Maryland Patient Advocacy Group (MPAG) are both 501c3 non-profit agencies dedicated to finding the cause, better treatment and cure for atypical HUS and advocating for the needs of ESRD patients.

 

Kidney Community Emergency Response Coalition (KCER)

 The Kidney Community Emergency Response (KCER) Coalition provides technical assistance to ESRD Networks, Medicare organizations, and other groups to ensure timely and efficient disaster preparedness, response, and recovery for the kidney community. The KCER Coalition strives to provide disaster preparedness resources to save lives, improve outcomes, empower patients and families, educate healthcare workers, build partnerships with stakeholders, promote readiness in the community, and support the ESRD Network Program.

KDOQI

The Kidney Disease Outcome Quality Initiatives created by the National Kidney Foundation have been placed online in HTML format for easy and quick access. These K/DOQI Guidelines have been established to assist health care professionals in early identification and mangement of kidney disease, with the intent of helping to improve clinical outcomes for individuals with kidney disease at all stages.

 

Kidney & Urology Foundation of America

A leader in its field for over 50 years, the Kidney & Urology Foundation of America is dedicated to helping the more than 70 million Americans who suffer from the debilitating effects of kidney, urologic, and related diseases, and to fostering ground-breaking research that will result in new and better treatments.

 

Life Options Rehabilitation Program

Since 1993, the Life Options Rehabilitation Program has been exploring ways to help people on dialysis live long and live well.

 

LifeLink Foundation

LifeLink Foundation is a non-profit community service organization dedicated to the recovery of an increasing number of high quality organs and tissues for transplant therapy. The Foundation attempts to work sensitively, diligently, and compassionately with donor families to facilitate the donation of desperately needed organs and tissues for waiting patients.

 

NANT

National Association of Nephrology Technicians

 

National Kidney Disease Education Program (NKDEP)

NKDEP was created by the National Institute of Diabetes and Digestive and Kidney Diseases to close the gap between evidence and practice. Working through a Steering Committee, Work Groups and private and public partners, NKDEP aims to reduce morbidity and mortality from kidney disease by raising awareness about the seriousness of the problem and the importance of prevention, early diagnosis, and appropriate management.

The program will initially target primary care providers and people at highest risk for kidney disease--particularly African Americans with diabetes, hypertension and/or a family history of kidney failure--in four pilot cities: Baltimore, MD; Atlanta, GA; Jackson, MS; Cleveland, OH.

 

National Org. for Renal Disease (NORD)

Licensed, health agency that produces health events/expos yearly in the Southern California area. Licensed, health care professionals oversee and provide health screenings. Target high-risk communities predisposed to developing kidney disease, diabetes and high blood pressure. Provides some related educational materials-including nutrition and diet. All services are free of charge. Volunteer driven. Target population: Latino, African American, Native American, Asian, Pacific Islander and seniors.

 

National Renal Administrators Association (NRAA)

 

The National Renal Administrators Association (NRAA) is a voluntary organization representing professional managers of dialysis facilities and centers throughout the United States. Our members manage approximately two-thirds of the dialysis services to a majority of Medicare End-Stage Renal Disease SRD) patients. From a few charter members in 1977, the NRAA has become the largest national association representing renal administrators and managers. The NRAA fulfills the diverse needs of both hospital-based and freestanding facilities. Through education, networking, information, and governmental representation, NRAA aims to maintain competence and enhance professionalism throughout the renal community.

 

Northwest Kidney Centers (NKC)

NKC provides outpatient dialysis, home hemodialysis and peritoneal dialysis and support services to patients with kidney failure. Services include: In Center Dialysis, Home Dialysis, Acute Dialysis ServiceL Pharmacy, Nutrition Services, Patient Finance Services, and Social Services 

The PKD Foundation

The PKD Foundation is the only organization, worldwide, devoted to determining the cause, improving clinical treatment and discovering a cure for Polycystic Kidney Disease (PKD).

 

The Renal Physicians Association of Michigan (RPAM)

The Renal Physicians Association of Michigan